Nov 2, 2023
Championed Healthcare Activist Ady Barkan Passes After ALS Battle
Inspirational activist for healthcare rights, Ady Barkan, who championed in medicare and single-payer initiatives following his A.L.S. diagnosis passes at 39 years old. Francesca Fiorentini and Rayyvana break it down on The Damage Report.
- 3 minutes
Recognition and rest in peace for
Ady Barkan, who was a well-known
activist who campaigned for
Medicare for all despite suffering and
because of suffering with ALS, which is a
terminal neurogenerative disease, he died.
He was 39 years old.
[00:00:16]
This was from his wife who posted on
his Instagram page saying, excuse me,
his Twitter saying hi,
this is Ady's wife, Rachel.
I'm devastated to share the news that
Ady has died from complications of ALS.
You probably knew Ady as
a healthcare activist, but
more importantly, he was a wonderful
dad and my life partner for 18 years.
[00:00:36]
Now I think it's just really important
to stop down and remember that this is
someone who has been arrested multiple
times in the halls of Congress,
standing with other disability
rights folks who are standing for
not just protecting Medicare,
but expanding it to all people.
And he and others who have terminal
illness, who need long-term care,
[00:00:55]
know that it is literally impossible
to survive or live a quality life,
to be able to have 18 years with
your partner and have two children.
If you need constant round-the-clock care,
you have to be rich.
You have to be wealthy to do that.
[00:01:12]
He was not.
His family was not.
They are raising funds now to
help in memory of Ady Barkan.
So there is a GoFundMe.
I'll just throw that up here and
it's remembering -Ady.
[00:01:27]
So Ray, just any thoughts on this?
I mean, of all the people you would
imagine fighting for Medicare for
all, like someone who has lost all
use of their limbs, their voice,
someone who's suffering,
if this is true, he was truly a hero.
[00:01:46]
>> Speaker 2: Absolutely, and I think
that a lot of people when they think
of the disabled community,
they sort of paint a picture.
People who are not involved with
disability rights organizing people who
maybe don't have anyone in their family
that is involved in the disability
[00:02:02]
rights movement, they think of a tacit
group of people who are suffering.
But in my experience as
a disabled person protesting for
disability rights,
working in disability rights advocacy,
they're some of the people who are most
willing to do civil disobedience.
[00:02:18]
They're the people who are most willing
to hit the streets because they have to
become, out of necessity,
advocates for themselves.
We have to become our own best advocates
because oftentimes no one else is gonna
do it for us.
Ady was a giant in the community and
this is a devastating loss.
So I implore anybody who has the means,
[00:02:35]
who's able to contribute to the GoFundMe,
please do.
If you don't, totally understandable.
Please share the link
because some people in your
network might be able to contribute.
So in any way that you can give back,
please do.
And remember that
the disability community is
[00:02:53]
on the front lines of the fight for
Medicare for all,
not just tacit supporters of it,
but leaders in this movement.
And Ady will be missed definitely.
>> Yeah, and everyone should go back and
watch some of his interviews.
[00:03:12]
He's just an incredible
thinker on all this.
And again, he's fighting for
not just himself and
others in the disabled community,
but all of us.
And let's take up this mantle, right?
Anyway, thank you so much, Ady, for
all of your work, rest in power.
[00:03:29]
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The Damage Report: November 2, 2023
Hosts: Francesca Fiorentini Guests: Rayyvana
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